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CHARGE Syndrome Charity Golf Day 2016

Pelican Waters Golf Club

Friday 26 August 2016 Pelican Waters Golf Club 40 Mahogany Drive, Pelican Waters Sunshine Coast, Queensland The CHARGE Syndrome Association of Australasia is hosting a Charity Golf Day at the prestigious Greg Norman-designed Pelican Waters Golf Club on QLD’s beautiful Sunshine Coast. The event promises to be fantastic day for all golf enthusiasts (or novices!) and […]

Calling for research participants – feeding difficulties for people with CHARGE syndrome

We need your help! Alexandra Hudson, under the supervision of Dr Kim Blake, from the Dalhousie University in Canada is currently conducting a research study into developing and validating an oral feeding scale to assess feeding difficulties specifically in CHARGE syndrome. Alexandra is very keen to enrol children with a confirmed diagnosis of CHARGE syndrome […]

Calling for participants!

I would like to inform you of another new research study titled “Experiences with feeding and swallowing, as it relates to mouth over-stuffing and pocketing of food in cheeks, during meals in children with CHARGE Syndrome”. This is a voluntary research study involving two short questionnaires and an interview with a student researcher consisting of […]

CHARGE Family Networks Meeting

You are invited to attend the next CHARGE Family Networks Meeting on Tuesday 5 May, 7pm – 8pm, via teleconference. This meeting is devoted to providing information on the NDIS (National Disability Insurance Scheme) and NDIA (National Disability Insurance Agency). The presenter is Justin Elks, Senior Case Manager, Able Australia. Justin has an excellent understanding […]

CHARGE Family Networks Meeting – Victoria

Date: Sunday 29 March 2015 Time: 10 am to 2pm Venue: Able Australia, 616 Riversdale Rd, Camberwell VIC 3124 Catering: Lunch will be provided. Guest speaker: Justin Elks, Senior Case Manager, Able Australia This meeting is devoted to providing information on the NDIS (National Disability Insurance Scheme) and NDIA (National Disability Insurance Agency). Justin will […]

Join us for the next CHARGE Family Networks Meeting in Victoria

Able Australia logo

The next CHARGE Family Networks Meeting will be held at Able Australia in Camberwell, Victoria. At this meeting we will meet with Carla Anderson, Manager of Deafblind Services and Justin Elks, Case Manager to explore how Able Australia may be able to provide services to children and adults with CHARGE syndrome. CHARGE Family Networks Meeting Victoria Flyer […]