Program & Speakers

Our international and local speakers will present a wide range of evidence-based topics that reflect best practice in the medical, research, educational, psychosocial and therapeutic fields related to CHARGE syndrome and multi-sensory impairment. These presentations will provide practical take-home strategies for families/carers, individuals, professionals and educators.

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Program

(subject to change)

Day 1 Friday 25 May

Location
5 pm Registration opens Function foyer
6-8 pm Meet and greet
(finger food, beer, wine, soft drinks)
Parkside Room 5

Day 2 Saturday 26 May

8 am Registration opens Function Foyer
8.25 – 8.30 am Mandy Nolan – MC
Housekeeping
Parkside Room 5
8.30 – 8.50 am Robert Last
Keynote Address – What a career!
Parkside Room 5
8.50 – 9.30 am Dr. Daniel Choo
General ENT and audiological development in CHARGE syndrome
Parkside Room 5
9.30 – 10.10 am Assistant Prof. Kasee Stratton-Gadke
Pain and stress on challenging behaviours for individuals with CHARGE syndrome
Parkside Room 5
10.10 – 10.30 am Dr. George Williams
Update on CHARGE Syndrome and current genetic research
 Parkside Room 5
10.30 am MORNING TEA (Exhibitors)  Function Foyer
11 – 11.40 am  David Brown
Developmental and behavioural implications of vestibular dysfunction in CHARGE syndrome
 Parkside Room 5
 11.40 – 12.20 pm  Dr. Nancy Salem-Hartshorne
Multidisciplinary assessment which focuses on language development and is person centred
 Parkside Room 5
 12.20 – 1 pm Prof. Tim Hartshorne
Behaviour – dissecting and making sense of it.
Parkside Room 5
 1 – 2 pm LUNCH (Exhibitors)
 2 – 2.40pm Dr. Kim Blake
Q&A feeding checklist and sharing the clinical checklist
Parkside Room 5
 2.40 – 3.30 pm Dr. Kim Blake and Dr. Nancy Salem-Hartshorne
Teenage and adult medical issues
 Parkside Room 5
 3.30 – 4 pm AFTERNOON TEA  Function Foyer
4 – 4.15 pm Lauren Chanter and Chloe Stevenson
Monash University Occupational Therapy Students.
Project: Social relationships and connections (friendships) for those with CHARGE syndrome
Parkside Room 5
 4.15 – 4.55 pm Assistant Professors Kasee Stratton-Gadke and Daniel Gadke
Preparing for puberty and sexuality in CHARGE: Important considerations!
 Parkside Room 5
 4.55 – 5 pm Housekeeping  Parkside Room 5

Saturday evening

5 – 6 pm Secret Women’s Business
Tipple, talk and timeout
Lord Melbourne Room
5 – 6 pm Secret Men’s Business
Beer, babble and billiards
Dame Nellie Melba Room
 6.30 – 10 pm Gala Dinner (including CHARGE Got Talent)
3 course meal, soft drinks. Alcohol at bar prices

Day 3 Sunday 27 May

8 am Registration opens
 8.45 am MC Mandy Nolan
Housekeeping
 Parkside Room 5
8.45 – 10.30 am Assistant Professors Kasee Stratton-Gadke and
Daniel Gadke
Closed session: Young adults group
 Parkside Room 3
 8.50 – 9.20 am Heather Flynn
Parent story – Transition to Adulthood
Parkside Room 5
 9.20 – 9.50 am Kathy Dean
Parent story – Home schooling
 Parkside Room 5
 9.50 – 10.30 am Kathy Bodycoat and Marea Howe
Legal issues, advocacy and future planning
 Parkside Room 5
 10.30 am MORNING TEA
 11 – 11.40 am Donna Shaw
National Disability Insurance Scheme – Insights
 Parkside Room 5
11.40 – 12.10 pm Speakers TBC
Young adults panel
Parkside Room 5
 12.10 – 1 pm Rob Last, David Brown, Lisa Russell
Closing remarks
 Parkside Room 5
1 pm Close of conference
1 – 2 pm Lunch

 

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