Become a part of the CSAA Committee!

The next CHARGE Syndrome Association of Australasia’s AGM is being held 7pm (AEDST) Tuesday 13 December 2016 via teleconference. This is your chance to help shape how we support adults and children with CHARGE syndrome and their families and carers across Australia and New Zealand. The procedure is easy. Simply open the 2016-2017 AGM nomination procedure […]

CHARGE Syndrome Charity Golf Day 2016

Pelican Waters Golf Club

Friday 26 August 2016 Pelican Waters Golf Club 40 Mahogany Drive, Pelican Waters Sunshine Coast, Queensland The CHARGE Syndrome Association of Australasia is hosting a Charity Golf Day at the prestigious Greg Norman-designed Pelican Waters Golf Club on QLD’s beautiful Sunshine Coast. The event promises to be fantastic day for all golf enthusiasts (or novices!) and […]

Calling for research participants – feeding difficulties for people with CHARGE syndrome

We need your help! Alexandra Hudson, under the supervision of Dr Kim Blake, from the Dalhousie University in Canada is currently conducting a research study into developing and validating an oral feeding scale to assess feeding difficulties specifically in CHARGE syndrome. Alexandra is very keen to enrol children with a confirmed diagnosis of CHARGE syndrome […]

CHARGE Syndrome Golf Day

Pelican Waters Golf Logo Final

Friday 23 October 2015 Pelican Waters Golf Club 40 Mahogany Drive, Pelican Waters Sunshine Coast, Queensland The CHARGE Syndrome Association of Australasia is hosting a Charity Golf Day at the prestigious Greg Norman-designed Pelican Waters Golf Club on QLD’s beautiful Sunshine Coast. The event promises to be fantastic day for all golf enthusiasts (or novices!) […]

Calling for participants!

I would like to inform you of another new research study titled “Experiences with feeding and swallowing, as it relates to mouth over-stuffing and pocketing of food in cheeks, during meals in children with CHARGE Syndrome”. This is a voluntary research study involving two short questionnaires and an interview with a student researcher consisting of […]

CHARGE Family Networks Meeting

You are invited to attend the next CHARGE Family Networks Meeting on Tuesday 5 May, 7pm – 8pm, via teleconference. This meeting is devoted to providing information on the NDIS (National Disability Insurance Scheme) and NDIA (National Disability Insurance Agency). The presenter is Justin Elks, Senior Case Manager, Able Australia. Justin has an excellent understanding […]