The CHARGE Syndrome Association of Australasia is managed by a passionate and dedicated committee of volunteers – primarily parents of people with CHARGE syndrome, as well as medical professionals and others who are interested in the condition.


The CHARGE Syndrome Association of Australasia Ltd is committed to improving the health, education and wellbeing of children and adults with CHARGE Syndrome and supporting their families in Australia and New Zealand.

A Brief Overview

  • An organisation established by parents informally in the late 1980’s and formally, by becoming a registered charity, in 1994.
  • Is managed by a voluntary committee of parents of and people with CHARGE syndrome, medical professionals and others with an interest in the syndrome.
  • Funds its services through membership fees, donations, grants, sponsorship and fundraising.
  • Has a membership of individuals with CHARGE syndrome and their families. Affiliate membership is available to professionals and interested individuals.

Read more about CSAA




What we do

The Committee

CSAA Patron

Annual Reports

Corporate Governance