I would like to inform you of another new research study titled “Experiences with feeding and swallowing, as it relates to mouth over-stuffing and pocketing of food in cheeks, during meals in children with CHARGE Syndrome”. This is a voluntary research study involving two short questionnaires and an interview with a student researcher consisting of questions regarding your child’s experience on the following topics: eating, mouth over-stuffing or pocketing of food in cheeks during eating, swallowing and choking during eating, experiences with speech language pathology therapy and physiotherapy.
If you are a parent/guardian of an individual who has a confirmed diagnosis of CHARGE syndrome and has experienced mouth over-stuffing and/or pocketing of food in cheeks during eating, you may be eligible to participate. Please contact Alexandra Hudson at firstname.lastname@example.org
For more information about the study, please review the Invitation to Participate below:
Your participation is greatly appreciated!