Calling for research participants – feeding difficulties for people with CHARGE syndrome

We need your help! Alexandra Hudson, under the supervision of Dr Kim Blake, from the Dalhousie University in Canada is currently conducting a research study into developing and validating an oral feeding scale to assess feeding difficulties specifically in CHARGE syndrome. Alexandra is very keen to enrol children with a confirmed diagnosis of CHARGE syndrome from around the world and invite you to participate. They are looking for 50 more participants and every individual counts! The Invitation to Participate is below.

CHARGE Feeding Scale Invitation to Participate

The study involves completing an online survey that should take approximately 15 minutes. She also asks that you forward the Invitation to Participate and survey link below to your or your child’s Feeding Therapist.

The survey link:

Please donate your time to this important study. The study closes at the end of August.

Thank you.

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