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Conference program

Please note: there are still some activities and presentations to be confirmed.

Friday 3rd April

6pm-8pm – Welcome Reception in Boardwalk Gallery

Saturday 4th April

8:30am-8:45am – Housekeeping & official opening (Mandy Nolan & Madelene Rich)

8:45am-9:15am – Keynote - MOOC launch (Rob Last & Chris Parker)

9:15am-9:50am – CHARGE 101 - Title TBC (presenter - TBC)

9:50am-10:30am – Behaviour - Title TBC (Tim Hartshorne)

10:30am-11am – MORNING TEA

11am-11:40am - Why are children with CHARGE syndrome so lazy? (David Brown)

11:50am-12:30pm – Looking after the family unit as a whole - Title TBC (Anna Holliday)

12:30pm-1:30pm – LUNCH

1:30pm-2:10pm - ENT - Title TBC (Daniel Choo)

2:20pm-3pm – Cyber safety (Anna Holliday)

3pm-3:30pm – AFTERNOON TEA

3:30pm-4:10pm – GI Issues/vagus nerve - Title TBC (Kim Blake)

4:10pm-4:50pm – Giving grief a name - Title TBC (Anna Holliday)

4:50pm-5pm – Housekeeping

5:00-5:15pm – Choir of High Hopes Concert* TBC

5:30pm-6pm – Rehearsals – CHARGE Got Talent

6:30pm-10pm – Gala dinner and CHARGE Got Talent

Sunday 5th April

8:30am-9am – Education checklist – (Lily Slavin)

9am-10:30am – Group question session with Presenters

10:30am-11am – MORNING TEA

11:00am-12:30pm – Young adult panel – Transition focus

12:30-1pm – Closing remarks

1pm-2pm – LUNCH – conference closed

In addition to the main presentations:

  • Prerecorded sessions by Nancy Hartshorne & Kassee Stratton available for all delegates attending

  • Full workshop for 16+ year olds preparing for transition, on Saturday

  • Club CHARGE

    • Saturday - onsite activities with Choir of High Hopes workshop and concert (TBD)

    • Sunday - short excursion to Nutgrove playground or Queen’s Domain playground (TBD)

  • Poster presentations