CHARGE Syndrome Australia announcement

November 2025

Over the last 30 years, CHARGE Syndrome Australasia has proudly supported the CHARGE syndrome communities in Australia and New Zealand. As our communities have grown, so too have the needs and opportunities to deliver more focused, responsive, and locally led support and activities.

To better serve each country’s unique needs and comply with the legal requirements for charitable organisations in each country, CHARGE Syndrome Australasia board made the strategic decision in October 2025 to transition into two separate, independent charitable entities: CHARGE Syndrome Australia (CSA) and CHARGE Syndrome New Zealand Trust.

Why the change?

This shift allows each organisation to:

  • Operate under local legal and financial frameworks

  • Develop country-specific programs and advocacy

  • Build stronger local partnerships

  • Deliver national events and services with local leadership

Most importantly, this change strengthens our ability to serve families and professionals in each country — while continuing to collaborate on shared goals and joint initiatives.

What stays the same?

  • A shared commitment to families living with CHARGE syndrome

  • Continued collaboration between CSA and CSNZ as partner organisations

  • Joint advocacy and awareness efforts when appropriate

  • Ongoing access to shared resources, information, and support

CHARGE Syndrome Australia will continue to support the New Zealand community during this transition, while CHARGE Syndrome New Zealand Trust builds its capacity as a locally led organisation.

For any questions, don’t hesitate to get in touch

We are grateful for your continued support and look forward to building a strong, collaborative future together, and locally.

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