Our community
CHARGE Syndrome is rare, but you are not alone. Our families are connected for critical peer support and to share tips and tricks for tackling CHARGE challenges! If you want to find families nearby, get in touch and we will connect you if we can.
Email us at admin@chargesyndrome.org.au
Other ways to connect
Conferences - the next in-person conference is in March 2026 in Christchurch New Zealand.
Social media - consult the brains trust on facebook. Details below.
Subscribe to our newsletter - get advocacy news, updates, and resources delivered by email.
Local meet-ups - keep an eye out for local meet up events, or host one yourself!
Facebook groups
CHARGE syndrome Australia New Zealand
This is a parent-led closed facebook group, for local families, carers, people with CHARGE Syndrome, and also for those with an interest in CHARGE syndrome. The aim of the group is to provide a safe, understanding space, where members can share information and advice, learn from one another, celebrate together and support each other.
Join the CHARGE Syndrome Australia New Zealand Facebook Group
CHARGE syndrome adults 18+
This group is for adults who have CHARGE syndrome and 18+. No parents or professionals allowed (unless they have CHARGE syndrome).
Join the CHARGE Syndrome Adults 18+ Facebook group
Grandparents of individuals with CHARGE syndrome
A place where grandparents can connect and discuss concerns and issues important to them. A place to have an open discussion about their feelings, their loss, and their gains.
Join the Grandparents of individuals with CHARGE Syndrome Facebook group
Conferences & webinars
The CHARGE Syndrome Association of Australasia organises a conference every two years. A range of topics is covered relevant for families, individuals with CHARGE syndrome, educators and for medical professionals.
The next conference will be held in Christchurch, New Zealand, in March 2026. For more information go to CHARGE syndrome Australasia Conference 2026.
Take a look at our photo galleries from previous conferences.
Stories from our community
Read real stories of people living with CHARGE syndrome—their challenges, achievements, and everyday moments. Through these personal experiences, we celebrate resilience, raise awareness, and connect families, friends, and professionals across our community.