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Connecting families with information, experts and other families.

Making the CHARGE syndrome journey simpler and easier.


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What is CHARGE syndrome?

Answers to your questions about CHARGE syndrome, causes, likely outcomes, and more.

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Support for families and carers

Help in finding information, resources and how to connect with other families.

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Conference 2020
in Hobart

The next biennial conference is just around the corner.


“Why I Am Me” book

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19.95 43.95

“Why I Am Me” is a story about a boy called Sam who has CHARGE syndrome and his friend Jess.

“Why I Am Me” is a must read for those whose lives are touched by a person with CHARGE syndrome.

All profits from the sale of this book go towards improving the health and welfare of children and adults with CHARGE syndrome in New Zealand and Australia.

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We have so much to learn from people who have CHARGE syndrome.

We can learn from their resilience, their strength of will, their determination to learn, their sense of humour and their unique charm.

They have been able to achieve these strengths while having to manage the day-to-day health, physical, communication and learning challenges
that this highly complex syndrome can bring.
— Rob Last

Get Involved


The association is actively looking for people within and new to the CHARGE community to assist with the day to day running of the association and special events.


Your donations help fund events and provide services for the CHARGE community.


Find out how you can volunteer to help support our CHARGE community.


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