Stories from our community
Life with CHARGE
Families from around Australia and New Zealand have shared their stories. Read about their challenges, achievements, and everyday moments.
Life with CHARGE
Children with CHARGE - a film by Rob Last
Rob Last AM captured a record of eight children who had been diagnosed with CHARGE syndrome. In 1993, he filmed these eight young people and followed their progress again in 2000 and 2007.
These extraordinary people are: Anthony, Julia, Yasmin, Brianna, Talisa, Ellen, Sophia and Andrea. In 1993 he focused on their communication and gross motor development, and in 2000 and 2007 he focussed on broader issues. He captures their spark, their skills, their challenges and we hear about their hopes and dreams for the future.
All of the eight short videos are available on You Tube.
You taught me
A collection of stories providing a unique insight into how people with CHARGE syndrome have lived their lives and how they have touched the professionals who have worked with them. The stories are of individuals with CHARGE syndrome from around the world.
Author: Andrea Wanka