Community fundraising

The 2024 conference will be our first in six years.  Conferences are incredibly valuable and life-changing for families, individuals and siblings, providing a sense of ‘belonging’ as they connect/reconnect with others living with CHARGE syndrome. For some, it will be their first time connecting with other families. 

We are a small charity, run by parent volunteers. We need your help to rally the wider community for donations. We have launched a chuffed campaign so it is easy for you to share with your friends and networks.

The most valuable part of these conferences is hearing from other parents about their experiences with their own children and things they had gone through and what worked for them.
— Mum of a 20yr old girl with CHARGE syndrome

Don’t forget your employer or contacts at larger companies who might be willing to donate. We can help you write a letter tailored to a specific organisation.


Partnership opportunities

The conference is a unique chance for companies to connect face to face with 100+ individuals, their families and professional providers who are looking for support, expertise and services for people with CHARGE syndrome.

We have a limited range of sponsorship packages and exhibitor opportunities for companies to partner with us at the conference. If you would like a copy of the partnership packages, please contact our Event Manager, Jodie McLean - jodie@jemevents.com.au

We welcome any introductions to organisations, corporations and individuals who may be interested in sponsoring or exhibiting at the conference.