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 CHARGE Syndrome Australasia
Home
What is CHARGE?
What is CHARGE syndrome?
Learning about CHARGE syndrome
Our stories
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Conference 2026
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Advocacy
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About us
About us
Awareness Day
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Join the Board
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Get involved
Get involved
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Store Why I am me
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Why I am me

A$19.95

Published in 2011 by CHARGE Syndrome Australasia.

“Why I Am Me” is a story about a boy called Sam who has CHARGE syndrome and his friend Jess.

“Why I Am Me” is a must read for those whose lives are touched by a person with CHARGE syndrome.

All profits from the sale of this book go towards improving the health and welfare of children and adults with CHARGE syndrome in New Zealand and Australia.

For bulk orders please contact the association to confirm quantities and shipping costs.

Quantity:
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Published in 2011 by CHARGE Syndrome Australasia.

“Why I Am Me” is a story about a boy called Sam who has CHARGE syndrome and his friend Jess.

“Why I Am Me” is a must read for those whose lives are touched by a person with CHARGE syndrome.

All profits from the sale of this book go towards improving the health and welfare of children and adults with CHARGE syndrome in New Zealand and Australia.

For bulk orders please contact the association to confirm quantities and shipping costs.

Published in 2011 by CHARGE Syndrome Australasia.

“Why I Am Me” is a story about a boy called Sam who has CHARGE syndrome and his friend Jess.

“Why I Am Me” is a must read for those whose lives are touched by a person with CHARGE syndrome.

All profits from the sale of this book go towards improving the health and welfare of children and adults with CHARGE syndrome in New Zealand and Australia.

For bulk orders please contact the association to confirm quantities and shipping costs.

“Why I Am Me” is a story about a boy called Sam who has CHARGE Syndrome and his friend Jess. As the story progresses Jess learns about CHARGE Syndrome and the challenges Sam faces on a day-to-day basis.

Written by Carry Ward and Marie Patterson with illustrations by Penny Levett, the idea for this book was sparked by questions asked by a young person with CHARGE. As a result the book is written from a unique perspective.

The story is supported by medical information, diagrams and photographs of children and young persons with CHARGE in New Zealand and Australia.

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