Books
Hey, I reached adulthood, now what?
A collaboration between CHARGE Syndrom e.V. (Germany) and the CHARGE Syndrome Association of Australasia, this fantastic new resource focuses on adults with CHARGE syndrome talking about school, job, living and independence.
Developed by Claudia Junghans and our very own Rob Last, and featuring stories from Ellen Howe, Belinda Arnell, Sean Rich and Sarah Dalton and other adults from around the world.
CHARGE Syndrome (Second Edition)
Authors Tim Hartshorne, Meg Hefner and Kim Blake have produced the second edition of the book CHARGE syndrome.
The new edition, co-edited by Kim Blake, includes a chapter on educational issues, updated references and revised chapters, additional images and illustrations.
A companion website available after purchase, with links to related videos and downloadable versions of the checklists described in the book.
Available for purchase at Plural Publishing.
Why I am Me
Published in 2011 by CHARGE Syndrome Australasia.
“Why I Am Me” is a story about a boy called Sam who has CHARGE syndrome and his friend Jess.
“Why I Am Me” is a must read for those whose lives are touched by a person with CHARGE syndrome.
All profits from the sale of this book go towards improving the health and welfare of children and adults with CHARGE syndrome in New Zealand and Australia.
For bulk orders please contact the association to confirm quantities and shipping costs.
Hiya Moriah
A beautifully illustrated, rhythmic story about a young girl's life with CHARGE syndrome. Through her brave attitude, and silly humor, Moriah is an inspiration for us all. This is a book that families can enjoy together with a timeless message about love and acceptance, and just saying "hiya" when making a new friend with different abilities.
Yahya in CHARGE
Written by Eman Kanaani, this book tells the story of her son, Yahya who was born with CHARGE syndrome. It is a journey through Yahya’s first three years and in Eman’s words ‘it is written in a comic positive way that is ideal for both kids and their parents’.